Journal article

Uncertainty and the unmet informational needs of patients with cancer of unknown primary (CUP): a cross-sectional multi-site study

L Guccione, K Fisher, L Mileshkin, R Tothill, D Bowtell, S Quinn, A DeFazio, CS Karapetis, N Wilcken, M Singh, C Steer, B Gao, M Warren, IM Collins, N Karanth, C Bryant, P Schofield

Supportive Care in Cancer | SPRINGER | Published : 2022

Abstract

Objective: This study aimed to determine the healthcare experiences, quality of life, and psychosocial needs of patients with cancer of unknown primary (CUP) early after diagnosis; comparing their experiences to patients with advanced cancer of a known primary (non-CUP control patients) and published general population reference data where available. Methods: This study was a cross-sectional, multi-site study comparing CUP patients (n = 139) compared to non-CUP controls (n = 45). Demographic, clinical information and patient-reported outcome questionnaire data were collected at baseline. Results: Differences in healthcare experienced were found between CUP and non-CUP controls with CUP patie..

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